University of Miami

Description

People with ALS do best with coordinated care for the wide range of needs they develop over the course of their disease. Research has shown that people with ALS who are treated at a multidisciplinary clinic live longer and have a better quality of life than those who are not. At the multidisciplinary ALS clinic at the University of Miami, we provide the full range of clinical services for ALS patients through all stages of the disease.

Welcome to the University of Miami ALS Clinical and Research Center. We provide the highest level of care and multispecialty support for patients and families living with Amyotrophic Lateral Sclerosis (ALS) from the time of diagnosis to the end stages of the disease, while conducting advanced research into the cause and cure of ALS.

Monthly Patient Support Groups are held at the University of Miami with the goals of providing education about ALS and services/products that may be of help and value to patients and families living with ALS. In addition to providing emotional and psychological support, these meetings also offer opportunities for patients and families to interact and network, learning from each other’s experiences.

ALS is a serious burden, but you are not alone. There are thousands of people and dozens of local and national groups dedicated to raising awareness, offering support, and fighting this disease.

The nurse and the nurse practitioner play many different roles for patients and their families. At the time of diagnosis, they are on hand to provide support, understanding, and education about ALS, working with you in a positive way to begin the process of adjusting to the diagnosis and planning for the future. They also provide information about the multidisciplinary clinic, arrange your first follow-up visit to the clinic, and serve as the liaison among the team members. Nurses or nurse practitioners also coordinate referrals for community or in-home services, when that is appropriate.

Products & services

Similar companies nearby